From: Biegel, Roberta
Sent: Monday, March 10, 2008 9:55 AM
To: Biegel, Roberta
Subject: FW: Bone Health Advocacy E-News - Winter 2007-08

 

 

  Bone Health Advocacy E-News

Winter 2008

In this issue:

  • Patient Access to Osteoporosis Testing
  • Research Funding
  • Advocacy Training

Patient Access to Osteoporosis Testing

During the past year, NOF and its advocates urged Congress to remedy the drastic reductions in Medicare reimbursement for specialized osteoporosis tests so vital to osteoporosis prevention, diagnosis and treatment.  As a result of these cuts, slated to continue through 2010, many physicians say that they will be unable to continue offering dual energy x-ray absorptiomety (DXA) tests for osteoporosis, threatening access to quality healthcare for osteoporosis patients. 

Unfortunately, Congress, with limited time and money, did not address this issue before it went home.  As a result of the work Congress did not complete in 2007, osteoporosis advocates have a full agenda for 2008.  

As you may be aware in Fall 2007, Representative Shelly Berkley introduced the “Medicare Fracture Prevention and Osteoporosis Testing Act of 2007” (H.R. 4206) which would roll back Medicare reimbursement for DXA testing to the 2006 level and require the Institute of Medicine to report on the consequences of reduced reimbursement and provide recommendations for increasing osteoporosis testing, which currently is severely under-utilized.
 
We thank everyone in the Bone Health Advocacy Network who contacted their federal legislators!   We still need your help!

We urge you to ask your Members of Congress to protect patient access to quality osteoporosis healthcare. Please tell your family, friends and colleagues to join us.  For additional information and to contact your Members of Congress automatically, click here to log on to www.nof.org/advocacy

Research Funding

After vetoing the initial bill Congress sent to him because it was too expensive, the President signed subsequent legislation passed by Congress for 2008, which includes health funding. The National Institutes of Health received less than one percent increase, for a total of $29.2 billion.  Although overall this is a large sum, the increase does not equal the inflationary costs of research, thus limiting new grants.   As a result, osteoporosis research funding is predicted to remain static at $168 million.  Nonetheless, we are pleased to report that Congress successfully funded the National Children’s Study, which will include assessments of bone growth.

The Department of Defense bone research program, for which NOF advocates strongly, will continue to be funded, but as a result of an across-the-board 20 percent reduction, it will be supported at only $800,000. 

We will keep you posted on how you can help advocate for bone research to improve the quality of life of those with or at risk for osteoporosis.

Advocacy Training

On November 1st, NOF partnered with the Rhode Island Osteoporosis Coalition to bring the “Strong Voices for Strong Bones Advocacy Training Meeting” to the New England region.  Healthcare professionals, social workers, women and men with osteoporosis, and family and friends of people with osteoporosis from Rhode Island, Connecticut, Massachusetts and New Hampshire came together to learn more about bone health issues affecting their states and the nation and how to advocate for better public policies.

Below is the panel of speakers who discussed barriers to osteoporosis prevention and healthcare and how to overcome them:

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Susan Sweet, an independent state health affairs consultant

Christopher Koller, MA, Rhode Island State Insurance Commissioner

Lee Bursley, LISCW, an osteoporosis advocate

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Director of the Rhode Island Department of Health David Gifford, MD, MPH, the keynote speaker, addressed the prevalence of osteoporosis and the public health and policy implications of the disease in the region and the United States.

Chair of the Rhode Island Osteoporosis Coalition Geetha Gopalakrishnan, MD, welcomed participants and moderated the panel discussion.

NOF Senior Director of Public Policy and Government Relations Roberta Biegel described NOF programs, including its Bone Health Advocacy Network and Advocacy Action Center, and discussed policies that would help those with or at risk for osteoporosis.

Attendees were provided with tips for effective communication to help them build long-term relationships with elected officials and techniques for ongoing advocacy.  They also were provided with current policy information, opportunities for small group discussions and role-playing as well as voicing their views and networking (below).

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NOF looks forward to working with other communities as it continues its advocacy training program. 

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