As more and more people today are taking responsibility for the own health care, they look for information and sources of support to help cope with serious diseases like osteoporosis. Those who first break a bone or hear that their T score indicates osteoporosis may suddenly be facing unexpected lifestyle changes and may even feel confused and alone. Understanding more about the disease and finding a source of support and advice becomes a priority.
Support groups provide a way to learn more about osteoporosis and how to live with the disease directly from those in similar situations. They provide an open opportunity to share information, feelings and goals to help patients continue living fulfilling lives – even with osteoporosis.
NOF sponsors osteoporosis support groups throughout the country. The many benefits of joining a support group include:
For privacy reasons, NOF does not list phone numbers, addresses or email information for support group leaders on our website. For more information on joining a support group or to find a support group In your community, contact the National Osteoporosis Foundation at (202) 223-2226 or toll free at (800) 231-4222.
If there is not a support group in your area, consider starting one. NOF depends on volunteers to serve as support group leaders. Both healthcare professionals and people with osteoporosis make excellent support group leaders.
In addition to meeting and sharing with each other, support group members receive educational information. Some support groups have guest speakers, and some incorporate exercise. The focus depends on the needs and interests of the support group and community. Support groups may meet monthly, quarterly or less often.
NOF provides all support groups leaders with excellent resources including:
Contact us today to learn more about starting or joining a support group. Hear how joining a support group has helped these osteoporosis patients:
“I learned from my osteoporosis support group that knowledge gives you the power to fight this disease.”
-NOF Englewood Community Hospital Support Group, Englewood, FL
“When a support group was formed in my home town, I joined. A whole world opened up for me, and I learned how to help myself. I learned about exercise, medication, nutrition and much more."
- NOF Citrus County Osteoporosis Support Group, Hernando, FL