Support Groups

As more and more people today are taking responsibility for the own health care, they look for information and sources of support to help cope with serious diseases like osteoporosis. Those who first break a bone or hear that their T score indicates osteoporosis may suddenly be facing unexpected lifestyle changes and may even feel confused and alone. Understanding more about the disease and finding a source of support and advice becomes a priority.

Support groups provide a way to learn more about osteoporosis and how to live with the disease directly from those in similar situations. They provide an open opportunity to share information, feelings and goals to help patients continue living fulfilling lives – even with osteoporosis.

Joining a Support Group

NOF sponsors osteoporosis support groups throughout the country. The many benefits of joining a support group include:

  • Learning more about the disease and treatment choices
  • Receiving the most up-to-date information about osteoporosis
  • Improving coping skills by learning how others handle the disease
  • Exchanging information about community resources, including healthcare providers who treat osteoporosis
  • Improving mental and physical well-being
  • Finding hope and encouragement

For privacy reasons, NOF does not list phone numbers, addresses or email information for support group leaders on our website. For more information on joining a support group or to find a support group In your community, contact the National Osteoporosis Foundation at (202) 223-2226 or toll free at (800) 231-4222.

Starting a Support Group

If there is not a support group in your area, consider starting one. NOF depends on volunteers to serve as support group leaders. Both healthcare professionals and people with osteoporosis make excellent support group leaders.

In addition to meeting and sharing with each other, support group members receive educational information. Some support groups have guest speakers, and some incorporate exercise. The focus depends on the needs and interests of the support group and community. Support groups may meet monthly, quarterly or less often.

NOF provides all support groups leaders with excellent resources including:

  • Support group manual — A comprehensive guide to help you start, promote and conduct successful support group meetings.
  • Free educational materials — NOF will provide brochures, information sheets, quarterly newsletters, PowerPoint presentations, posters and more.
  • Networking opportunities — NOF will connect you with other support group leaders to help you network and exchange ideas.
  • Topics and program ideas — NOF maintains a list of topics and program ideas.
  • Referrals — NOF will direct all inquiries to join a support group in your area to you, helping you grow your membership.

Contact us today to learn more about starting or joining a support group. Hear how joining a support group has helped these osteoporosis patients:

 “I learned from my osteoporosis support group that knowledge gives you the power to fight this disease.”
-NOF Englewood Community Hospital Support Group, Englewood, FL

 “When a support group was formed in my home town, I joined. A whole world opened up for me, and I learned how to help myself. I learned about exercise, medication, nutrition and much more."
- NOF Citrus County Osteoporosis Support Group, Hernando, FL


Emotional Aspects of Osteoporosis

When you first learn that you have osteoporosis, you may become anxious. Especially if the diagnosis stems from a broken bone that resulted from a minor accident or no accident at all. This might make you afraid to continue your daily activities, but it's important to manage your anxiety and find ways to continue doing what makes you happy.

Posture Exercises

When a person develops kyphosis, the posture becomes stooped or hunched. The back also becomes stiff and difficult to straighten. Bending forward compresses (squeezes) the front of the spine, making it more likely to break a bone in the spine.

Just for Men

Although women are at greater risk, men get osteoporosis too. If you think you can’t get osteoporosis because you’re a man, think again. As our population ages, even more men will get the disease.